How much does it cost?

Lifetime Memberships are $50. If you decide to make a change to the qualities you listed in your data space, the cost is $25. There is no cost to members who received a Gifted Membership. 

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What is the difference between entering 1 OR 10 Qualities or 1-10 Quality Lists?

You have the ability to tell us if you want to be connected to someone who wants to talk about ANY of the individual Qualities you list; or, you can list your Qualities in groups to be connected with another person only if each Quality listed is a match. For example, If you would like to talk to anyone who has Diabetes, you would list that as one of your Qualities like this: 1-Diabetes. If you would like to only talk to someone who has Diabetes as well as Chronic Fatigue, Hypotonia and Anxiety, you would list it like this: 1-Diabetes, Chronic Fatigue, Hypotonia, Anxiety. Then, you will only be matched with someone who is also looking for the same list of Qualities. You may choose up to 10 Individual Qualities or 10 Lists of Qualities on your Connect Contact Form. 

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How do I Sponsor Someone?

Do you know someone who is experiencing a health challenge for themselves or their child? If you would like to help, give them the gift of connecting to someone who understands what they are going through. You can purchase them a Gifted Membership to Some 1 Like You! This is a Lifetime Membership to our Connection Database. Simply purchase a Gifted Membership on our Payments page, list their email address in the notes section, and we will do the rest! Additionally, for every S1LY membership sold, one is donated to someone fighting a rare disease.

How do I become a Distributor?

If you would like to sign up to be notified when Gifted Memberships are available to be distributed through an organization like yours, email now to apply to become a Distributor. If your organization qualifies, we will place you on our list to receive Gifted Memberships for your patients or guests should the opportunities arise.

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What is a Gifted Membership?

Were you nominated for a Gifted Membership? If so, your friend may have purchased one for you, or a local hospital or sports organization may have received a number of Gifted Memberships to pass out to its members! This means your lifetime membership fee to S1LY has been covered and your secure data space is waiting for you. Please note, if your Gifted Membership was received as a part of a Rare Disease campaign, processing time frames are oftentimes extended depending on the volume of responses. Potential initial data analysis can take up to two weeks to be identified when volumes are high. 

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Is my information secure?

Your information is kept private & secure. We will never sell your data. The only data shared with another member is the email address you provide on your Connect Contact Form and each quality you both listed alike. While the information you share on this form may be similar to your own situation, it does not identify you or your child directly as we do not collect your name, date of birth or social security number. The following is how we will use and disclose your de-identified information: We will use your email address to connect you with other people who match the criteria listed of what they are also looking for in someone else, and all your communications are done between you and your match, not on our site. Our server is secure, and your payment information is safe & never stored. We will never share your email address without your permission. All matches are sent to our members via encrypted email for added security. 

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What is a Change Submission?

Once you have purchased your Initial Membership, those qualities will be used to match you with another member. Even after we establish your first connection and provide you with their email address(s), we will continue to look for any additional connections as new members enter the database. If you have had a change in diagnosis or symptoms, you can then choose to submit a Change Submission (aka Data Refreshment) if you would like. If you do, we will update your qualities in our system to match you with different members. Please note that anytime you submit a Change Submission the fee is $25 regardless if you add or delete 1 or 10 Qualities. 

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