_edited_.png)
hello from the other side!
June 03, 2020
We hope as this message finds its way to you, you are feeling safe and healthy. Our world looks very different now due to COVID-19. Our last updates were pre-pandemic and so much has changed. It feels as if we are greeting you, our friends, from a completely different space. Like you, we have had experiences we never could have imagined, and are continuing to adjust to this ever-changing place we live in.
As a patient with a complex medical condition, you never know when new health challenges may develop. I can assure you that even during a global pandemic, Lily has handled her own new symptoms with incredible strength.
She IS brave. + the universe listens to brave.
CO Avalanche VS Montreal Canadiens = Be Kind Royals
March 21, 2020
Join us for a special game night on Saturday, March 21st, benefiting Quist Middle School @ the Pepsi Center! $10 of each ticket sold will benefit Rodger Quist Middle School + their BE KIND Project! Students at Quist Middle School will invest these funds into their community through a kind act they choose, along with their mentors and peers!
GET TICKETS/FLYER: https://91b7849e-c819-40fb-b50c-e003647b82ff.usrfiles.com/ugd/91b784_30e1a8a84faf4b9899a3bab0cee49fec.pdf
100 Special Olympics Colorado schools to receive the book BE KIND, Silly this week
February 24, 2020
Students across Colorado will soon listen to Lily's story, BE KIND, Silly as a part of the Special Olympics Colorado Young Athletes Inclusion Program. Their 100 schools will receive a copy of the book and companion guide to use in their classrooms.
A KIND COLLAB
February 14, 2020
We can't WAIT to collaborate with our friends at Art of compassion- The Courage to Be Kind! Stay tuned for details, we are busy crafting up something magical.
BE KIND, Silly featured in Story Monsters Ink Magazine
February 01, 2020
Eight-year-old Lily Allison knows how it feels to be bullied. Three years ago, she was diagnosed with a rare disease known as Ehlers-Danlos Syndrome. Since then, she’s been subjected to cruel taunts because of her disability. Rather than dwelling on her hurt feelings or lashing back at the bullies, Allison’s response has been to focus on making the world a better place by promoting a culture of kindness.
Lily featured on the cover and inside Voya's 2020 Calendar
January 01, 2020
Voya is a financial services company helping pave the way for inclusion in America! Disability:IN Voya is committed to making a positive difference in the lives of individuals with special needs and disabilities — as well as their families, caregivers and other providers — through its Voya Cares® program.
Voya Financial Pledges to purhcase 1000 BE KIND Silly books
November 13, 2019
Beginning on World Kindness Day on Nov. 13, 2019, Voya Financial will match the next 1,000 purchases of BE KIND, Silly by purchasing 1,000 additional copies of the book that will be distributed to schools across the United States in 2020.
What's your Everest?
August 10, 2019
Voya Financial + S1LY Leaders hiked A-Basin alongside Mandy Harvey + Lily for the annual What's Your Everest Fundraiser for No Barriers 501c3 in the beautiful mountains of Colorado. Hiking next to Lily is Erik Weihenmayer, an American athlete, adventurer, author, activist and motivational speaker, and the first person without eyes to reach the summit of Mount Everest, on May 25, 2001 For this feat, he was honored with a Time Magazine cover story. Erik is the co-founder of No Barriers.
8 Year Old BE KIND Advocate has some exciting news to share!
August 23, 2019
BE KIND Youth Advocate Lily has some very special news to share- all while we captured a dream surprise of her own! Stay tuned!
Rare Sisters Work to Persuade Researchers
August 09, 2019
Rare Sisters Lily Allison + Marianna Sommer work to persuade physicians at Seattle Children's Research Institute to include rare conditions into the research they are already doing. The young girls, aged 7 + 8, advocate on behalf of additional research being included in current research studies to help those with rare disorders.
BE KIND Head Wraps are coming soon!
November 11, 2018
These lovelies are on their way to Bloom Kids Collection in Lafayette, Indiana! They are the most cuddly + warm head wraps ever. We will have them available on our Some 1 Like You site in 13 colors in both adult & youth sizing later this month for $22. A portion of the proceeds go to support our BE KIND Project.
Surpise Sale!
October 25, 2018
20% OFF our BE KIND Buffalo Check Cap
(+ FREE SHIP!)
USE CODE: FLASH through 10/28 or while supplies last!
All other caps 15% OFF with code: SUGARRUSH
Every purchase helps connect families in health crises.
https://www.some1likeyou.com/shop
Every occasion calls for kindness. 💛🎃
October 22, 2018
Use code: SUGARRUSH to save 15% now through 10/31 & receive a FREE BE KIND Vinyl Decal! (+ FREE SHIP!)
Shop now to see our new BE KIND Collection!
https://www.some1likeyou.com/shop
Every purchase helps connect families in health crises.
7Everyday Hero: Colorado mom forms a health match making system
October 11, 2018
If you are facing a medical crisis or rare disease, there is a good chance you may also feel isolated. Like you are the only one going through it all. What if you could connect with someone facing the same hurdles, someone who truly understands what you're going through? 7Everyday Hero Makayla Allison allows you to do just that.
In a world where you can be anything... BE KIND. 🌎
October 05, 2018
According to our friends at StopBullying.Gov, "Kindness is one of the most significant contributors to positive school climate." In honor of National Bullying Prevention Month this October, we urge parents, school staff, and other adults in their communities to help kids prevent bullying by spreading the message to BE KIND.
🍁 Happy fall, y'all!
October 01, 2018
You can spread kindness this season by wearing a BE KIND necklace in rose, yellow or white gold, while helping connect families in health crises directly to each other. Simply tell us which metal you prefer in the facebook comments & react to the post to enter to win! 1 WINNER will be chosen @ 12pm MST on 10-4.
💛 Shop 15% off until Thursday with code: FALL18
T+Cs: https://bit.ly/2P2P6bd
Spreading Kindness with Allstate
September 16, 2018
Thank you SO much to our partners at Jennifer Matthews: Allstate Insurance for sharing this weekend with us at Parker Oktoberfest 2018! We are blessed to have your incredible support to help spread our mission!! 💙😍
Through the sale of products that spread the universal message of hope to BE KIND, those in health crises are connected directly to each other.
Oktoberfest 2018 in Parker, CO!
September 14, 2018
Starting tonight at 6pm, you can find us all weekend long in Parker, CO at Oktoberfest 2018! All BE KIND Project Merchandise is 15% OFF. We have our new fall hats in stock online as well as at our BE KIND + Allstate Booth!
Online code for FREE SHIP + 15% OFF: BEKINDALL
It's 'kind of' a big deal...
September 04, 2018
We know we're in good hands! 😍Our new partners at Allstate are just as excited as we are to support our mission to privately connect those with health conditions while spreading the universal message of hope to BE KIND!
Purchase 4 Purpose!
August 01, 2018
We are SO excited to announce that our next item created to support our #BEKIND Project is now available for pre-sale! https://www.some1likeyou.com/shop use code: P4P to save $5 & get free shipping!
'BE KIND' Project is making its way across the US!
July 28, 2018
We are very excited to announce that our new, special initiative called the 'BE KIND' Project is making its way across the US! This campaign, inspired by 7 year old Lily, was created to provide our partners at @rmhc_denver with a Lifetime Membership to Some 1 Like You L3C to one of their families each time a BE KIND necklace is sold.
Help us share the universal message of hope. Coming this fall to a retail location near you!
Available in Rose, Yellow or White Gold.
Sisters Forever
July 27, 2018
Lily & Mariana are two rare friends with one big dream: to be sisters forever! These little cuties not only inspired their own mamas to found both Some 1 Like You L3C and Born a Hero 501c3, but their positive spirits continue to encourage others to be kind, brave and strong. Congrats girls on your covers this year for Global Genes!
Happy Monday from Orlando, FL!
July 23, 2018
Some 1 Like You Be Kind Ambassador, Sara Al-Bazali, is busy sharing her platform for her reign under the Miss America Organization today in our sunshine state. 🌞
She believes that individuals have the right to connect with
someone like them without compromising their personal privacy in the process.
MAR Nationals 2018 is just 3 days (+ 12 hours + 12 minutes) away. 😍 Go Sara!
Say hello...
July 18, 2018
Say hello to the newest member of our S1LY team, Miss Colorado Pageant Outstanding Teen 2018, Sara Al-Bazali!
Sara will act as the Official Be Kind Ambassador for Some 1 Like You, in service as her platform during her year of reign for Miss America's Outstanding Teen System for 2018-2019.
Sara intends to use her talents to inspire a mantra of kindness and selflessness among youth and adults alike, while helping provide people the opportunity to directly affect change in the lives of others through the purchase of jewelry and apparel* with a positive message of hope.
Advocate & Connect
July 12, 2018
Our S1LY Team facilitated an incredible day program at the University of WY this week for the State of Wyoming Work Force Services and Vocational Rehabilitation. Alongside our partners Brian Johnson Photo, we connected Youth with Disabilities, ages 14-21, while giving them the tools they need to be successful in Advocacy and Disclosure, while focusing on their strengths to gain confidence to put their best foot forward for their future.
be kind, be silly, be brave
June 29, 2018
Happy Birthday, America! 🎉🇺🇸️
Celebrate with FREE SHIPPING & 20% OFF a BE KIND Necklace in rose, yellow or white gold. Your purchase will connect families at Ronald McDonald House Charities. Promo code: happy
Some 1 Like You Members, refresh* your data space at no charge, now through 7-5-18. Promo code: refresh
*limited to first 25 members
20 Year Anniversary... Miss USA 1998
June 06, 2018
Miss USA 1998, you were a shining star on your TWENTY YEAR Anniversary at the Miss USA Competition! 👑🌠Shawnae Jebbia is an inspiration to all of those fighting health conditions! She does not allow her own hearing impairment to come in the way of following her dreams. Thank you for being our incredible Some 1 Like You Official Spokesperson and a guiding light in the lives of our team and S1LY members every day.
The truth is... it's about more than soccer
June 04, 2018
Check out our Youth Advocate Lily's first season as a Baby Lady Pio in the film below. Thank you Denver Women's Soccer for recognizing Lily's positive drive and for sharing our Some 1 Like You mission!
20% OFF BE KIND SALE
May 23, 2018
No act of kindness, no matter how small, is ever wasted. 🌸 -Aesop
Get 20% OFF a BE KIND Necklace and help connect a family at Ronald McDonald House Charities of Denver, Inc. this holiday. FREE SHIPPING + 20% OFF CODE: HELLOSUNSHINE
Community Impact Award from Children's Hospital Colorado
May 18, 2018
S1LY Founder, Makayla Allison, receives Community Impact Award alongside her fellow board members of Colorado Rare 501c3 from Children’s Hospital Colorado. "We feel so blessed to be able to work together as a united voice for rare diseases in Colorado. Thank you to our friends, families and the entire rare disease community for your ongoing support as we work to make Colorado stronger."
Community Impact Award
May 18, 2018
S1LY Founder Makayla Allison, a Member of the Board of Directors of Colorado Rare 501c3 and a Member of the Family Advisory Council at Children's Hospital CO, along with her fellow board members, received the Community Impact Award from Children's Hospital Colorado for their outstanding representation of patient families both inside of CHCO as well as the greater Colorado community.
Spreading Kindness in Croatia
May 17, 2018
Our S1LY Community Ambassador Emma Burt is spreading kindness this week on the other side of the world! Today she is in Dubrovnik, Croatia!
Forever West
May 16, 2018
As vendors for Wyoming Vocational Rehabilitation, Some 1 Like You is delighted to be able to work directly with DVR Counselors and Staff to help privately connect individuals with disabilities as they seek to enter the workforce and maintain employment. Peer support is crucial to success!
BE KIND at Ronald McDonald House Charities
May 15, 2018
Our S1LY Youth Ambassador Lily is very excited to help privately connect families at Ronald McDonald House Charities of Denver, Inc. through our BE KIND Project!
#WINITWEDNESDAY
May 15, 2018
To celebrate the launch of our new BE KIND Project with Ronald McDonald House Charities of Denver, Inc., we're giving you the chance to win a $50 BE KIND Necklace* and donating a Lifetime Some 1 Like You Membership to a family at RMHC because of you!
BE KIND is now available at The Grey House in Estes Park, CO
May 13, 2018
BE KIND is now available at The Grey House!
The 'BE KIND' Project is a special initiative created to provide a family at Ronald McDonald House Charities of Denver, Inc. with a Lifetime Membership to Some 1 Like You each time a BE KIND necklace is sold.
FREE 4 Day Camp for Students with Disabilities
May 10, 2018
Students with disabilities have a unique opportunity this summer to hone skills and prepare for college or a career at a summer program on the University of Wyoming Campus. The program, which will run from July 11-14, is a partnership with the Wyoming Vocational Rehabilitation, Career Innovations & Some 1 Like You.
BE KIND Project with Ronald McDonald House Charities
May 09, 2018
We have developed a special initiative called the 'BE KIND' project to provide our partners at Ronald McDonald House Charities with a lifetime membership to Some 1 Like You to one of their families each time a BE KIND necklace is sold. Available in Rose, Yellow or White Gold.
Connect for Hope Project
May 01, 2018
When you have a rare or undiagnosed condition, finding someone who gets it is a game changer.
Introducing The Connect for Hope Project: Our new partnership with the Rare & Undiagnosed Network RUN.
CALIFORNIARARE
March 20, 2018
Now connecting Rare Disease Patients in California at no cost! https://www.some1likeyou.com/shop
PROMOCODE: CALIFORNIARARE
WYOMINGRARE
March 20, 2018
Now connecting Rare Disease Patients in Wyoming at no cost! https://www.some1likeyou.com/shop
PROMOCODE: WYOMINGRARE
S1LY is Freezin for a Reason for our friends at Special Olympics CO!
March 11, 2018
Come on out to see Some 1 Like You Spokesperson & former Miss USAShawnae Jebbia dive into freezing cold water at Elitch Gardens! She will be #freezinforareason! Help us make a difference for Special Olympics CO at the Polar Plunge!
We are proud to sponsor CO Miss Amazing!
March 04, 2018
Some 1 Like You is proud to be a sponsor of Colorado Miss Amazing 2018! Join us March 4th to witness this amazing nonprofit empower girls and women with disabilities while helping them to build confidence and self-esteem in a supportive environment.
FOX 31 Coverage of Rare Disease Day S1LY Youth Ambassador
March 01, 2018
DENVER -- According to Colorado Rare, one in 10 people living in the state has some sort of rare disease.
On Wednesday, a handful of parents and advocates brought their concerns of the needs of families battling rare diseases to the State Capitol. The star of the day was 7-year-old Lily, who is battling Hypermobile Ehlers-Danlos syndrome.
Seven-year old Lily Speaks at the Colorado State Capitol
February 28, 2018
We are SO proud of our #S1LY Youth Ambassadors Lily Kate Spletzer & Cailee Crossley! They delivered speeches about their own experiences with rare disease on local Capitol Hill yesterday that were both inspirational and real.
Seacrest STUDIOS at Children's Hospital
February 12, 2018
What a special way to spend an afternoon with our friends at Seacrest Studios and Children's Hospital!
RARE DAILY Global Genes Podcast Finding a Rare Friend
February 23, 2018
Makayla Allison’s daughter Lily was born with a rare genetic disease with many symptoms, complex challenges, and no diagnosis. As she grew older, one of the things she told her mother she wanted was to have friends like her, ones with the same health issues. That led Allison to create Someone 1 Like You, an online service that connects people with rare diseases with others with the same conditions. We spoke to Allison, founder and CEO of Some 1 Like You, about the genesis of the service, how it works, and why a diagnosis isn’t necessary to finding a connection.
Filming at Children's Hospital Colorado
February 04, 2018
So thankful for our #S1LY team today & everyday!
We spent the day filming with our Colorado Rarefamilies at Children’s Hospital Colorado to raise awareness for the complex needs of those fighting rare diseases.
In My Heart at Children's Hospital Colorado
February 12, 2018
Join Colorado Rare 501c(3) and Former Miss USA (and rare disease patient) Shawnae Jebbia in the atrium at Children’s Hospital Colorado! She will be reading the book "In My Heart: A Book of Feelings", taking photos and visiting with patients to help raise awareness for the complex needs of those living with rare diseases.
Some 1 Like You will be distributing donated #S1LY memberships to rare disease patients for our 1000 Colorado Rare Connection Project.Colorado Rare will be offering both support and a UNITED VOICE as we prepare with our community for Rare Disease Day at the Colorado State Capitol.
COLORADORARE
February 01, 2018
Someone you love may be fighting a #RareDisease, whether you realize it or not. In honor of #RareDiseaseDay, please share this video so that it can reach the 1 in 10 Coloradans who need it the most at no cost!
PROMOCODE: COLORADORARE
Soar on into the Pepsi Center to see the Avs!
January 04, 2018
Lily & Colorado Avalanche Ice Girls are representing 1 in 10 who have a Rare Disease at the Colorado Avalanche Pepsi Center.
Special Film with Horizon Pharma & Global Genes
December 20, 2017
Six-year old Lily shares her story about her own Rare Disease Diagnosis and how Some 1 Like You has changed her life. hEDS doesn’t stop her from taking on the world. We recently followed Lily and her family at the Global Genes Rare Patient Advocacy Summit. Take a look at Lily’s extraordinary journey, and stay tuned for more inspirational videos from the Global Genes 2017 Summit. #RAREis Lily Some 1 Like You Makayla Allison
Thank you Mandy Harvey for supporting our mission!
December 22, 2017
Rare is more common than we think - 1 in 10 Coloradans have #RareDisease like Lily. Share to help find patients and connect them to Some 1 Like You, where they can be matched to other patients just like them!
We are excited & ready for the road ahead... Here we go!
December 13, 2017
Our hearts are SO full today. We are proud to announce that Some 1 Like You is now officially recognized as an L3C. This is an entity form available for charitable organizations with a social mission as their primary goal, rather than maximizing income. Essentially, an L3C is a hybrid of a for-profit and a nonprofit venture.
Giving Tuesday 2017
November 28, 2017
In honor of #givingTuesday, we encourage donations to the 501c(3) Colorado Rare which acts as a united voice for the over a half a million Coloradans with #raredisease.
DONATE HERE: https://www.some1likeyou.com/news
#Tuesday only, you can sponsor a #S1LYmembership for half off! Your $25 purchase will sponsor a lifetime membership, & we will match that by also donating one to someone fighting#rare disease. https://www.some1likeyou.com/shop
2017 Tribute to Champions of Hope
September 22, 2017
What an amazing night at the Global Genes 2017 Tribute to Champions of Hope! We are honored to have spent this week with such amazing people from all over the world. — with Makayla Allison in Anaheim, California.
"Everyone you meet is fighting a battle you know nothing about." Ian Maclaren
September 11, 2017
Say HELLO to a new partner of ours! The Doll Kind is a line of interactive dolls and tokens that encourage kind acts... to inspire, encourage, and empower children to create a kinder world. The Doll Kind has created a tool for our little ones to put kindness into practice.
We will see you at the Summit!
August 08, 2017
Some 1 Like You could not possibly be more excited to announce our upcoming exhibit at theGlobal Genes Rare Patient Advocacy Summit in Irvine, CA this September 14-15!
Not only will we be advocating with our 6 year old daughter Lily Kate who has the rare diseaseEhlers–Danlos syndrome, but we will also be sharing our organization with others who wish to connect privately with those who share their health conditions, regardless if they have received a diagnosis or not.
S1LY is a Vendor for the State of MT Voc Rehab!
August 03, 2017
Feelings of isolation can hinder the realization of ability.
Our vision is to privately connect individuals with health challenges among populations, thus allowing interpersonal support to create new ways of dealing with particular obstacles.
S1LY is a Resource for TAV HEALTH!
July 24, 2017
S1LY is proud to now be included nationwide in the TAVHealth database of community resources!
Feature with the Hearing Health Foundation
June 22, 2017
Our 6-year-old daughter, Lily, was recently diagnosed with Ehlers Danlos Hypermobility(EDS-HT). We received this diagnosis only after she acquired more than three dozen symptoms and diagnoses of uncertain significance, ranging from global joint pain and muscle weakness to tinnitus, and over the course of nearly five years.
First Came LOVE
April 12, 2017
How the fight for our daughter and her #raredisease #diagnosis of #ehlersdanlossyndrome has only just begun. www.some1likeyou.com