We hope as this message finds its way to you, you are feeling safe and healthy. Our world looks very different now due to COVID-19. Our last updates were pre-pandemic and so much has changed. It feels as if we are greeting you, our friends, from a completely different space. Like you, we have had experiences we never could have imagined, and are continuing to adjust to this ever-changing place we live in.
As a patient with a complex medical condition, you never know when new health challenges may develop. I can assure you that even during a global pandemic, Lily has handled her own new symptoms with incredible strength.
She IS brave. + the universe listens to brave.